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National Resources

The National Network
(under construction)

American Association on Intellectual and Developmental Disabilities:
Since 1876, the American Association on Intellectual and Developmental Disabilities (AAIDD) has been providing worldwide leadership in the field of intellectual and developmental disabilities. We’re a powerful community of leaders with a strong voice and important mission. AAIDD, (formerly AAMR — American Association on Mental Retardation) is the oldest and largest interdisciplinary organization of professionals and others concerned about intellectual and developmental disabilities.

Administration for Community Living:
Administration on Intellectual and Developmental Disabilities: AIDD is dedicated to ensuring that people with disabilities have opportunities to make their own choices, contribute to society, have supports to live independently, and live free of abuse, neglect, and exploitation. In each state and territory, AIDD grantees form a developmental disabilities network, or DD Network, made up of State Councils on Developmental Disabilities; State Protection and Advocacy Systems; and University Centers for Excellence in Developmental Disabilities. AIDD also funds Projects of National Significance and administers the President’s Committee on Intellectual Disabilities.

The Arc of the United States:
The Arc is the largest national community-based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families. We work tirelessly to uphold our vision that every individual and family living with I/DD in the United States has access to the information, advocacy, and skills they need to support their full inclusion and participation in the community throughout their lifetimes.

Autism Society:
Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism. Through its national network, the Autism Society has spearheaded numerous pieces of federal, state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. The Autism Society’s website is one of the most visited websites on autism in the world and our on-line resource database, Autism Source™, and National Contact Center (800-3-AUTISM) provide information and service referrals to thousands of people each year.

National Association of Council on Developmental Disabilities

https://nacdd.org/

NACDD is the national association for the 56 Councils on Developmental Disabilities (DD Councils) across the United States and its territories. The DD Councils receive federal funding to support programs that promote self-determination, integration and inclusion for all people in the United States with developmental disabilities.

National Down Syndrome Society

https://www.ndss.org/

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

Sibling Leadership Network

https://siblingleadership.org/

The purpose of the Sibling Leadership Network is to  promote a broad network of siblings who share the experience of disability and people concerned with sibling issues by connecting them to social, emotional, governmental, and provisional supports across the lifespan enabling them to be effective advocates with their brother and sister, and to serve as change agents for themselves and their families

United Cerebral Palsy

https://ucp.org/

The purpose of the corporation shall be to promote the independence, productivity and full citizenship of people with cerebral palsy, intellectual and developmental disabilities, and other conditions, through an affiliate network.

Consortium for Citizens with Disabilities

http://www.c-c-d.org/index.php

The Consortium for Citizens with Disabilities, headquartered in Washington DC, is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. Since 1973, CCD has advocated on behalf of people of all ages with physical and mental disabilities and their families. CCD has worked to achieve federal legislation and regulations that assure that the 54 million children and adults with disabilities are fully integrated into the mainstream of society.

American Network of Community Options and Resources

https://www.ancor.org/

The American Network of Community Options and Resources (ANCOR) is a national, nonprofit trade association representing more than 1,600 private community providers of services to people with disabilities. Combined, we support over one million individuals with disabilities, and work to: Shape policy. Share solutions. Strengthen community.

Association of People Supporting Employment First

https://apse.org/

APSE is proud to be national voice of the Employment First movement. It’s an honor and responsibility that we take very seriously. Our national office, state chapters and board membership have achieved remarkable accomplishments. Determined to keep the momentum moving forward, the APSE board of directors considered our complex world and sought to answer: What is the right role for APSE in building the world we want to see?  With a focus on shared values and confirming APSE’s commitment to the view that everyone can and should work, the board of directors examined the many ways that APSE can support policymakers, funders, businesses, families, service providers and people with disabilities in advancing Employment First, the core of our common bond

 

Association of University Centers on Disability

https://www.aucd.org

AUCD supports and promotes a national network of university-based, interdisciplinary programs. Network members consist of: • 67 University Centers for Excellence in Developmental Disabilities (UCEDDs), funded by the Administration on Intellectual and Developmental Disabilities (AIDD) • 52 Leadership Education in Neurodevelopmental and related Disabilities programs (LENDs) funded by the Maternal and Child Health Bureau (MCHB) • 15 Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers (IDDRCs) funded by the Eunice Kennedy Shriver National Institute for Child Health and Human Development (NICHD)

Autism Speaks

https://www.autismspeaks.org/

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Autistic Self Advocacy Network

https://autisticadvocacy.org/

The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for autistic people. ASAN was created to serve as a national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power. Our staff work to advance civil rights, support self-advocacy in all its forms, and improve public perceptions of autism. ASAN’s members and supporters include autistic adults and youth, cross-disability advocates, and non-autistic family members, professionals, educators, and friends.

Council for Exceptional Children

https://www.cec.sped.org/

The Council for Exceptional Children is a professional association of educators dedicated to advancing the success of children with exceptionalities.

Council of Administrators of Special Education

http://casecec.org/_img/case_logo.png

CASE is an international professional educational organization which is affiliated with the Council for Exceptional Children whose members are dedicated to the enhancement of the worth, dignity, potential, and uniqueness of each individual in society.

COPAA

https://www.copaa.org/

An organization of attorneys, special education advocates and parents, a national voice for special education rights and to promote excellence in advocacy to secure high quality educational services for children with disabilities.

Disability Rights Education & Defense Fund

https://dredf.org/

DREDF is dedicated to improving the lives of people with disabilities through legal advocacy, training, education, and public policy and legislative development. 

Easterseals

http://www.easterseals.com/

As America’s largest nonprofit health care organization, Easterseals is committed to the comprehensive health and wellness of the more than 1.4 million people it serves each year and is prepared to respond to the needs of the one in four Americans living with disability today with outcomes-based services for all disabilities throughout the lifespan.

Family Voices

http://familyvoices.org/

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.  We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

National Association on Mental Illness

https://www.nami.org

National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.

National Association of State Directors of Developmental Disabilities Services

https://www.nasddds.org

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) represents the nation’s agencies in 50 states and the District of Columbia providing services to children and adults with intellectual and developmental disabilities and their families.

National Association of State Directors of Special Education

http://www.nasdse.org/Portals/0/NASDSEmasthead.jpg

NASDSE’s mission is to work with state education agencies to ensure that all children and youth with disabilities receive the educational supports and services they need from birth to be prepared for post-school education, career and independent living choices. NASDSE accomplishes its mission by establishing and maintaining relationships with those individuals and groups responsible for the development of policies, educational and other programs serving individuals with disabilities, and those responsible for implementation at the school, local district, state and national levels. NASDSE promotes leadership development through collaborative relationship building with these stakeholders based on its Leading by Convening initiative and strategies.

National Council on Independent Living

https://www.ncil.org/

The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. Founded in 1982, NCIL represents thousands of organizations and individuals including: individuals with disabilities, Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.

National Disability Rights Network

https://www.ndrn.org/

The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and the Client Assistance Programs (CAP) for individuals with disabilities.

National Down Syndrome Congress

https://www.ndsccenter.org/

The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. 

National Respite Coalition

https://archrespite.org/

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums. (ARCH is an anagram for Access to Respite Care and Help).

Source America (formerly NISH)

http://www.sourceamerica.org/

SourceAmerica is one of two U.S. central nonprofits designated in the Javits–Wagner–O’Day Act to support nonprofit agencies participating in the AbilityOne Program. Both central nonprofits work to provide employment opportunities for people who are blind or have other significant disabilities by providing them opportunities to produce goods and services under federal contracts.

Best Buddies

https://www.bestbuddies.org/

Best Buddies International is a dynamic and growing organization, thanks to the people that help advance its mission every day. From the Board of Directors to the summer interns, everyone on the Best Buddies team shares their energy and enthusiasm as they work to enhance the lives of people with intellectual and developmental disabilities.

VSA (Department of VSA and Accessibility at the John F. Kennedy Center for the Performing Arts)

https://education.kennedy-center.org/education/vsa/

VSA, the international organization on arts and disability, was founded more than 35 years ago by Ambassador Jean Kennedy Smith to provide arts and education opportunities for people with disabilities and increase access to the arts for all. Each year, 7 million people of all ages and abilities participate in VSA programs, in every aspect of the arts – from visual arts, performing arts, to the literary arts. Four principles guide VSA programs and affiliates: (1) Every young person with a disability deserves access to high quality arts learning experiences. (2) All artists in schools and art educators should be prepared to include students with disabilities in their instruction. (3) All children, youth, and adults with disabilities should have complete access to cultural facilities and activities. (4) All individuals with disabilities who aspire to careers in the arts should have the opportunity to develop appropriate skills.

 

Special Olympics

https://www.specialolympics.org/

Special Olympics is a global movement of people creating a new world of inclusion and community, where every single person is accepted and welcomed, regardless of ability or disability. We are helping to make the world a better, healthier and more joyful place—one athlete, one volunteer, one family member at a time.

RespectAbility

https://www.respectability.org/

RespectAbility is a nonprofit, nonpartisan organization that understands we are a stronger community when we live up to our values – when we are welcoming, diverse, moral and respect one another. We work with entertainment, policy makers, educators, self-advocates, nonprofits, employers, faith-based organizations, philanthropists, journalists and online media to fight stigmas and advance opportunities for people with disabilities.

Special Needs Alliance

https://www.specialneedsalliance.org/

The Special Needs Alliance (SNA) is a national organization comprised of attorneys committed to the practice of disability and public benefits law. Individuals with disabilities, their families and their advisors rely on the SNA to connect them with nearby attorneys who focus their practices in the disability law arena.

TASH

https://tash.org/

TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates. 

National Alliance of Direct Support Professionals

https://www.nadsp.org/

The National Alliance for Direct Support Professionals (NADSP) is a national non-profit whose mission is to elevate the status of direct support professionals by improving practice standards; promoting system reform; and advancing their knowledge, skills and values. Our vision is a world with a highly qualified and professional direct support workforce that partners with, supports and empowers people with disabilities to lead a life of their choosing. NADSP values the full participation of people with disabilities in all aspects of community life through the provision of person-centered supports. We believe that high quality support requires all professionals to follow the individual path suggested by the unique gifts, preferences, and needs of each person they support, and to walk in partnership with the person, and those who love him or her, toward a life of opportunity, well-being, freedom, and contribution.